Visit 9... The full Monty this time because the 1th year of the trial is (almost) completed!! EDSS score (neurological exam), The extra tests: calculating and remembering in your mind and an agility test using your hands (first left then right) to put 9 pins in and out of the board. I have plenty experience of that because I own an instrument called the EMS Synthi it's has a similar matrix :D. And of course macula degeneration examination, Long function test, body scan for signs of skin cancer and an MRI.
My EDSS score was calculated to be 3.0 at this moment simply because I can't feel the tuning fork with my feet. I do feel everything with my feet but the inner, deeper embedded, sensory nodes are disconnected... so it seems. It used to be better. Strange thing is I can't notice it. Only with the use of a tuning fork. This time my reflexes on the left side (knee, feet) where more vigorous then right. It seems, compared to previous tests, my situation is not stable. Sometimes a certain body part functions better then an other time while for me it really makes no difference. I feel this is detail work so to say.
The rest of my condition is perfect. I feel the same as I was before the diagnosis. I can also feel my hands are getting better! So, it's only a matter of time before I can fully feel everything again with both hands. That would be the day :)
FTY720 clearly has caused less relapses in number and intensity over the period of a whole year and I'm *REALLY* happy with it. It literally has changed my life. I'm grateful for all those involved who developed the drug. Please continue! Your efforts make life for us, MS patients, way better. You made a difference! Thank you.
A note to all: FTY720 simply causes our immune system to slow down and effectively buying our body time to self heal (regenerate). The older you are the longer it will take to regenerate. I'm 37 at the moment of writing. Food, vitamins and so on are also important in the aid of regenerating. Stop smoking, eat healthy and balanced. Veggies, fruits, fatty fish they are all needed.